Days of DID cause

So my last post was written a bit tongue in cheek. I've switched Dr's & meds & all types of things in the past. I read everything voraciously. You think you label read? Come shopping with me. Bring a calculator. You're gonna need it.

But that isnt the point. While attempting to laugh in the face of very serious drug changes & interactions. After doing all my study & homework there is still one thing you just can't be sure of.

How is this stuff actually gonna work in MY body from a real world, practicality standpoint? Well kids, there's only one way to know for sure. Get yourself a drink, pray to the gods above & the large number of pills in your hand. Toss 'em back, take & drink & while looking toward the sky ask God for a little support. Or, hate to admit it but if it's gonna happen, take me quick. There's nothing fun about suffering.

I think that's why its called suffering.

I have some experience with this stuff so rather than take all 4 new meds @ the same time I did spread them out some. & 1 was directed as a p.m. med so that gave me some time also.

Call me paranoid but I know what to look for. I been doing this a long time. I could feel some minor side effects. Upset stomach, nausea. OK gotta alter the diet timing. Drowsy. Not always a bad thing. Could be a side effect to be taken advantage of in the short term.

They expected this new diuretic to work immediately. They just dont with me. I had an I.V. infusion on Mon that took until around 10 pm to really make a difference.

Anyway, I could feel the new diuretic literally sucking the fluid out from my head down. In a very unpleasant way. Plus, a headache. Which if you're not aware is a sign of dehydration & not the best thing to have happen while on pills that are made to remove water. Too much of a good thing.

BUT, no release of fluids. For over 24 hours I feel side effects. Pain, muscle fatigue, inability to function on any level.

And then there's the new anti-depressant/anti-anxiety drug. Its supposed to be a good one. Doc said take this at night. It will make you drowsy til you get used to it.

Drowsy? knocked me out immediately. Slept restlessly for the next 14 hours only to be accompanied by cramping, the dehydration, & what I can only describe as short term, not always happy, Lucy in the Sky type hallucinations. Sleep talking. My sister thought maybe I was talking to my mom &/or dad. Both passed in 2007. This scared her some. OK fine, it freaked her out. Didnt do much for me either.

After talking to the dr's ofc I think their main concern was I wasnt releasing fluids. Not MY main concern but Hey, What do I know. While speaking w/the PA she had the Dr on the othe line. The remedy??????

DOUBLE the dose. That lasted one attempt.

All meds had to be stopped. All of them.

I could not eat
I could not breathe
I could not sleep.
I could not stay awake or involved in conversation.
Total lethargy.

Diarrhea,
urination,
vomiting
But I had gained over 5 lbs in less than 2 days & it was only increasing.
And I'm not eating. So where's it coming from?

AH.......can't pee. Diarrhea increases.
Dry heaves to the point of bloody sputum.

Some violent shit here. Only to be accompanied by the inability to escape thru rest.

My diet was Carnation instant breakfast & Ice water for 3 days.

I made it to Monday. It was easy to see I didnt look good in the eyes of the public. But I made it.

We changed a few things. Took a couple new tests. Went back to some of the old meds.

I've eaten real meals the past 2 days. Not much but food I have to chew. I have dropped all the gained weight & am back to 156 which is where I was when this started. I still need to drop some more but it's easier to breathe & sleep again. Small steps are getting better results.

I'm sure I've missed a few things but I'm still not 100%. So have a heart. I fill in the blanks as they fill in themselves.

But I made it. I didnt think I was. I asked a couple times to make it stop right now. I've never felt anything like it & wouldnt wish it on my worst enemy. But even when I was beaten, there was still a dim light of hope. My mind would kick in & show the way to get out of this. I listened. I followed the plan. I did all I could to minimize the pain & maximize the comfort. Little by little I started to come out of it. I made it to the appt I'd been waiting a month for. I told you these girls were good. A month long waiting list for a heart failure clinic??? They have some chops.

So, thats it. I'll be back soon I hope & we'll continue as I can.

PEACE